Voice Epilepsy
Voice Epilepsy Episode 17: Interview with Chuck Carmen, Executive Director of the Epilepsy Association and Founder of EpilepsyU and EpilepsyStore

Voice Epilepsy Episode 17: Interview with Chuck Carmen, Executive Director of the Epilepsy Association and Founder of EpilepsyU and EpilepsyStore

May 7, 2021

Chuck Carmen joins us on the Voice Epilepsy™ podcast as host Kim Davidson, the CEO & Executive Director of the BC Epilepsy Society and the Founder of the I AM A VOICE for Epilepsy Awareness™ campaign, interviews Chuck Carmen, the Executive Director of the Epilepsy Association and the founder of EpilepsyU and the EpilepsyStore to discuss all of the amazing things that he has done for epilepsy.

Chuck Carmen has been the Executive Director of the Epilepsy Association since 1994 and only the second leader in the agency’s 59-year history. Selected by Southeast Association Magazine as one of the four most influential executives in the United States, he has served a board member of the Florida Society of Association Executives as well as the former Epilepsy Foundation of Florida and the Florida Epilepsy Services Providers Association.

Chuck is also the Founder of EpilepsyU.com, an online epilepsy news and education site that now reaches and average of 3.8 million people every month in over 150 countries. He also founded the Epilepsy Association’s social enterprise, EpilepsyStore.com, an online epilepsy awareness product store where 100% of the proceeds support the programs of Association.

Chuck’s long history in epilepsy has now made him the longest serving epilepsy executive director in the state of Florida. In addition to managing the day-to-day operations of the Epilepsy Association, his experience and knowledge has certified him as an “expert witness” where he has testified in numerous high profile cases involving epilepsy. Personally, he has conducted hundreds of presentations, seminars, and training programs on all aspects of epilepsy as well as becoming one of the nation’s leaders in the education and prevention of Shaken Baby Impact Syndrome.

Voice Epilepsy Episode 16: University of Victoria Study Seeks BC Family Participation

Voice Epilepsy Episode 16: University of Victoria Study Seeks BC Family Participation

May 3, 2021

In this episode of the Voice Epilepsy™ podcast, host Kim Davidson, is joined by Registered Psychologist and PhD level Pediatric Neuropsychologist, Dr. Sarah J. Macoun to discuss the Dino Island research intervention from the University of Victoria (UVic)

Dino Island is a cognitive intervention designed to improve attention and executive function abilities in children with neurodevelopmental concerns, special needs, and/or disabilities.

Dino Island combines tablet-base gaming with ‘interventionist’ training tailored to non- professionals (such as parents, teachers, support workers, etc.) by introducing evidence-based strategies for teaching problem-solving techniques to children.

This study is looking for participation from parents of children with neurodevelopmental issues and/or epilepsy.

For more information on this study, you can visit http://uvicdinoisland.cogtrain.ca/.

To sign up to take part in this study, please visit http://uvicdinoisland.cogtrain.ca/contact/.

Podbean App

Play this podcast on Podbean App